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Q. i just recently found out that i have skoliosis and its pretty bad ];
in the high fifties & above for both degrees so im gonna need surgery but im SOOO scared. i dont really know what to expect from this, and i dont want it to effect my life.
after i have my surgery, what kinds of things will i never be able to do again?
i looove gymnastics. its my heart & soul..and my specialist doctor told me i wont ever be able to join again. is this true? and if it is then WHY!? i want to be able to play sports like any other girl, but i dont want to be & feel disabled!!!!! will my back be stiff & unable to move at all? what will it feel like? will my scar be PERMANENT? im looking into some home recipes to cure the scar, but will it be huge?
ive been reading posts & people are saying that your life span gets shorter, you're not able to have kids, and not able to play sports, bend down, etc. IM REALLY FRIEKED OUT BY THIS! im only 13, and i atleast want a choice in my life. will i need to have more surgeries after that or will this be it? as you can see, im realy scared. i dont want surgery. all of the side effects are enough. some people have had good outcomes and some bad...im just really creeped!! i read that yoga helps a little bit, and there are exercises for a little alignment in the spine. can some one PLEASE give me good websites that include yoga moves for scoliosis?! or does anyone have real life stories/experiences? IM BEGGING FOR HELP!!
thanks):
in the high fifties & above for both degrees so im gonna need surgery but im SOOO scared. i dont really know what to expect from this, and i dont want it to effect my life.
after i have my surgery, what kinds of things will i never be able to do again?
i looove gymnastics. its my heart & soul..and my specialist doctor told me i wont ever be able to join again. is this true? and if it is then WHY!? i want to be able to play sports like any other girl, but i dont want to be & feel disabled!!!!! will my back be stiff & unable to move at all? what will it feel like? will my scar be PERMANENT? im looking into some home recipes to cure the scar, but will it be huge?
ive been reading posts & people are saying that your life span gets shorter, you're not able to have kids, and not able to play sports, bend down, etc. IM REALLY FRIEKED OUT BY THIS! im only 13, and i atleast want a choice in my life. will i need to have more surgeries after that or will this be it? as you can see, im realy scared. i dont want surgery. all of the side effects are enough. some people have had good outcomes and some bad...im just really creeped!! i read that yoga helps a little bit, and there are exercises for a little alignment in the spine. can some one PLEASE give me good websites that include yoga moves for scoliosis?! or does anyone have real life stories/experiences? IM BEGGING FOR HELP!!
thanks):
Answer
Lot's of questions, I'll try to answer all of them....
--after i have my surgery, what kinds of things will i never be able to do again?
Contact sports are about it. Do pay attention to any sports or activities that warn not to participate if you have back problems. Some only require that you get a note from your physician first (i.e. scuba diving).
--i looove gymnastics. its my heart & soul..and my specialist doctor told me i wont ever be able to join again. is this true? and if it is then WHY!?
If you have a fusion, the vertebrae in the spine are united together so that motion no longer occurs between them.
--i want to be able to play sports like any other girl, but i dont want to be & feel disabled!!!!!
I know you're scared and upset. That's perfectly normal.
I was diagnosed with scoliosis when I was 12 during a junior high screenings. I was very scared at first, but got in with a good group of doctors at Shriner's Hospital and they put me so at ease. I wore a Wilmington brace from under my arms to just over my hips for 10 mo., then had surgery shortly before I turned 14 (1985). My top curve was fused using stainless steel Harrington rods and bone chips from my hip. I had to go back into a brace about a year after my surgery for 10 mos. until my bottom curve was completely stabilized.
I'm as normally functioning as anyone (are any of us really "normal"?). I never got off schedule with school. Graduated college at 20 and have been an OR nurse for 16 years, one of the most physically demanding areas of nursing (lots of lifting and lots of standing in one place for long periods). I've had 2 children without difficulty (didn't even use an epidural). I love to travel (I don't set off metal detectors), yoga (though the fusion prevents some positions), and SCUBA dive. I can pretty much do anything I want...but don't tell my husband I use the scoliosis to get out of vacuuming :)
--will my back be stiff & unable to move at all?
see above
--what will it feel like?
My bottom curve aches now and then, I'm supposed to take 1-2 Alleve at bed time, but us nurses are awful patients, so I don't do it regularly.
--will my scar be PERMANENT? im looking into some home recipes to cure the scar, but will it be huge?
You have to have a strong sense of self and not let it mess with your idea of body image. I had a spinal fusion with iliac crest bone graft in 1985 (13 yrs old). I still have a 40 degree curve, a prominent shoulder blade, one shoulder is higher, my hips a little uneven, and rib prominence on one side. But my spine is stable, no breathing or cardiac problems and I carried two pregnancies without a hitch.
The one shoulder is higher makes it easier to sling a shoulder bag on. And those uneven hips...that one that juts out a little more is a perfect resting spot for an infant.
I have no problem wearing backless things. I think I have a great back scar. The hip scar, not so pretty. But everyone, EVERYONE, has problem areas on their body. I'm an RN, I've seen thousands of naked bodies, no one is perfect. Here are some other famous people who share scoliosis with us: http://www.scoliosis-world.com/famous_pe...
How you scar is an individual thing. Some people swear by cocoa butter. The back does tend to heal up pretty well for most people. Hips not so pretty because that skin gets pulled and stretched more.
--ive been reading posts & people are saying that your life span gets shorter, you're not able to have kids, and not able to play sports, bend down, etc.
Life span is not affected unless your curve is bad and you don't get it treated. Then it can put ressure n your lungs and heart. But if you get treatment, there's no affect on life span.
Scoliosis doesn't cause trouble conceiving. Once you are pregnant, you may have more back aches than most people, but it's tolerable. Pregnancy #1, I worked full time as a nurse until 1 mo. before delivering. Pregnancy #2, I was chasing my younger baby around (just 14 mo. apart). Both pregnancies, my scoliosis never slowed me down.
Thinking ahead to labor & delivery: If you are fused, depending on how far you're fused (anything below T12 gets tricky) you may not be able to have a spinal (spinal is better with scoliosis and fusion than epidural). When you get close to your due date get a referral to consult with the anesthesia group who covers where you'll be having the baby.
--will i need to have more surgeries after that or will this be it? as you can see, im realy scared. i dont want surgery. all of the side effects are enough. some people have had good outcomes and some bad...im just really creeped!!
Most people do fine. Talk with you surgeon about benefits and risks for you. What the treatment plan is for you.
--i read that yoga helps a little bit, and there are exercises for a little alignment in the spine. can some one PLEASE give me good websites that include yoga moves for scoliosis?!
Massage, exercise, physical therapy, and yoga can help strengthen the muscles of the back. They are not, however, a cure for scoliosis and will not be able to correct the abnormal curve.
I don't trust chiropractors. I had my back manipulated once or twice, it always hurt worse after they were done with it. As a nurse, I've also cared for a few patients who required surgery after seeing a chiropractor because the chiropractor actually caused nerve damage.
--or does anyone have real life stories/experiences? IM BEGGING FOR HELP!!
Are you being treated at a Shriner's Hospital/Clinic? I was a Shriner's patient and now I'm a nurse, so speaking as a patient and as a professional, I think Shriner's is the best place for scoliosis patients! If you are, ask the docs/nurses if they can arrange for you to visit/talk with other patients or people who will be involved in your care. Other places may do this too, but I think Shriner's goes above and beyond for their kids.
Lot's of questions, I'll try to answer all of them....
--after i have my surgery, what kinds of things will i never be able to do again?
Contact sports are about it. Do pay attention to any sports or activities that warn not to participate if you have back problems. Some only require that you get a note from your physician first (i.e. scuba diving).
--i looove gymnastics. its my heart & soul..and my specialist doctor told me i wont ever be able to join again. is this true? and if it is then WHY!?
If you have a fusion, the vertebrae in the spine are united together so that motion no longer occurs between them.
--i want to be able to play sports like any other girl, but i dont want to be & feel disabled!!!!!
I know you're scared and upset. That's perfectly normal.
I was diagnosed with scoliosis when I was 12 during a junior high screenings. I was very scared at first, but got in with a good group of doctors at Shriner's Hospital and they put me so at ease. I wore a Wilmington brace from under my arms to just over my hips for 10 mo., then had surgery shortly before I turned 14 (1985). My top curve was fused using stainless steel Harrington rods and bone chips from my hip. I had to go back into a brace about a year after my surgery for 10 mos. until my bottom curve was completely stabilized.
I'm as normally functioning as anyone (are any of us really "normal"?). I never got off schedule with school. Graduated college at 20 and have been an OR nurse for 16 years, one of the most physically demanding areas of nursing (lots of lifting and lots of standing in one place for long periods). I've had 2 children without difficulty (didn't even use an epidural). I love to travel (I don't set off metal detectors), yoga (though the fusion prevents some positions), and SCUBA dive. I can pretty much do anything I want...but don't tell my husband I use the scoliosis to get out of vacuuming :)
--will my back be stiff & unable to move at all?
see above
--what will it feel like?
My bottom curve aches now and then, I'm supposed to take 1-2 Alleve at bed time, but us nurses are awful patients, so I don't do it regularly.
--will my scar be PERMANENT? im looking into some home recipes to cure the scar, but will it be huge?
You have to have a strong sense of self and not let it mess with your idea of body image. I had a spinal fusion with iliac crest bone graft in 1985 (13 yrs old). I still have a 40 degree curve, a prominent shoulder blade, one shoulder is higher, my hips a little uneven, and rib prominence on one side. But my spine is stable, no breathing or cardiac problems and I carried two pregnancies without a hitch.
The one shoulder is higher makes it easier to sling a shoulder bag on. And those uneven hips...that one that juts out a little more is a perfect resting spot for an infant.
I have no problem wearing backless things. I think I have a great back scar. The hip scar, not so pretty. But everyone, EVERYONE, has problem areas on their body. I'm an RN, I've seen thousands of naked bodies, no one is perfect. Here are some other famous people who share scoliosis with us: http://www.scoliosis-world.com/famous_pe...
How you scar is an individual thing. Some people swear by cocoa butter. The back does tend to heal up pretty well for most people. Hips not so pretty because that skin gets pulled and stretched more.
--ive been reading posts & people are saying that your life span gets shorter, you're not able to have kids, and not able to play sports, bend down, etc.
Life span is not affected unless your curve is bad and you don't get it treated. Then it can put ressure n your lungs and heart. But if you get treatment, there's no affect on life span.
Scoliosis doesn't cause trouble conceiving. Once you are pregnant, you may have more back aches than most people, but it's tolerable. Pregnancy #1, I worked full time as a nurse until 1 mo. before delivering. Pregnancy #2, I was chasing my younger baby around (just 14 mo. apart). Both pregnancies, my scoliosis never slowed me down.
Thinking ahead to labor & delivery: If you are fused, depending on how far you're fused (anything below T12 gets tricky) you may not be able to have a spinal (spinal is better with scoliosis and fusion than epidural). When you get close to your due date get a referral to consult with the anesthesia group who covers where you'll be having the baby.
--will i need to have more surgeries after that or will this be it? as you can see, im realy scared. i dont want surgery. all of the side effects are enough. some people have had good outcomes and some bad...im just really creeped!!
Most people do fine. Talk with you surgeon about benefits and risks for you. What the treatment plan is for you.
--i read that yoga helps a little bit, and there are exercises for a little alignment in the spine. can some one PLEASE give me good websites that include yoga moves for scoliosis?!
Massage, exercise, physical therapy, and yoga can help strengthen the muscles of the back. They are not, however, a cure for scoliosis and will not be able to correct the abnormal curve.
I don't trust chiropractors. I had my back manipulated once or twice, it always hurt worse after they were done with it. As a nurse, I've also cared for a few patients who required surgery after seeing a chiropractor because the chiropractor actually caused nerve damage.
--or does anyone have real life stories/experiences? IM BEGGING FOR HELP!!
Are you being treated at a Shriner's Hospital/Clinic? I was a Shriner's patient and now I'm a nurse, so speaking as a patient and as a professional, I think Shriner's is the best place for scoliosis patients! If you are, ask the docs/nurses if they can arrange for you to visit/talk with other patients or people who will be involved in your care. Other places may do this too, but I think Shriner's goes above and beyond for their kids.
Scoliosis Surgery Questions!?
2011
I am having spinal fusion surgery in June of 2010. My curve is 44 thoracic and 36 lumbar. Here are some questions I have that I would like answered from people that have gone through surgery...
Am I being crazy for going through with the surgery even though my curves are not of great degree?
Do the metal rods set off the metal detectors at airports?
Can I go on vacation after a month of having the surgery?
There are probably more questions- I just can't think of them!
What about the vacation question... i'm going on vacation approx. a month after surgery- i wonder if thats okay? (sorry if you already answered the question)
Answer
Long but I think I answered each of your questions. Hope it helps.
In 1984, I was diagnosed with scoliosis when I was 12 during one of those junior high screenings. I wore a Wilmington brace from under my arms to just over my hips for 10 mo., then had surgery shortly before I turned 14 (1985). My top curve was fused using stainless steel Harrington rods and bone chips from my hip. I had to go back into a brace about a year after my surgery for 10 mos. until my bottom curve stabilized.
There are risks with every surgery, even minor procedures (I'm an OR nurse now).
My pain control was great. Only time I needed something extra was when I woke up and tried to sit up, I was half-asleep still and forgot to do it carefully.
Someone with more recent experience might be better to ask about the physical therapy. The only PT I did after surgery was minimal, basically just making sure you were able to walk steady...but this was 1985 when they used to keep you on bed rest for a week and then put you in a body cast...we don't do that any more, but you may need a brace until the fusion heals.
On average, you'll be in the hospital 3-5 days, taking care of yourself in about 7-10, weight restrictions for 6 mo. It takes about 6-12 mo. to completely recover. Talk with your physician about weight and activity restrictions based on how the type of surgery (posterior approach? trans-thoracic approach?) and your lifestyle (do you have to walk a lot at school/work? carry a heavy load? need to dive to work or school? etc.).
I'm as normally functioning as anyone (are any of us really "normal"?). I never got off schedule with school. Graduated college at 20 and have been an OR nurse for 16 years, one of the most physically demanding areas of nursing (lots of lifting and lots of standing in one place for long periods). I've had 2 children without difficulty (didn't even use an epidural). I love to travel (I don't set off metal detectors), yoga (though the fusion prevents some positions), and SCUBA dive. I can pretty much do anything I want...but don't tell my husband I use the scoliosis to get out of vacuuming :)
I still have a 40 degree curve, a prominent shoulder blade, one shoulder is higher, my hips a little uneven, and rib prominence on one side. But my spine is stable, no breathing or cardiac problems and I carried to pregnancies without a hitch.
The one shoulder is higher makes it easier to sling a shoulder bag on. And those uneven hips...that one that juts out a little more is a perfect resting spot for an infant.
I have no problem wearing backless things. I think I have a great back scar. The hip scar, not so pretty. But everyone, EVERYONE, has problem areas on their body. I'm an RN, I've seen thousands of naked bodies, no one is perfect. Here are some other famous people who share scoliosis with us: http://www.scoliosis-world.com/famous_people_with_scoliosis.htm
Are you being treated at a Shrinerâs Hospital/Clinic by your doctor? As a former patient and now a healthcare professional, I think it's absolutely the best place for scoliosis patients under 18! If you are, ask the docs/nurses if they can arrange for you to visit/talk with other patients or people who will be involved in your care. Other places may do this too, but I think Shrinerâs goes above and beyond for their patients.
Good Luck!
Long but I think I answered each of your questions. Hope it helps.
In 1984, I was diagnosed with scoliosis when I was 12 during one of those junior high screenings. I wore a Wilmington brace from under my arms to just over my hips for 10 mo., then had surgery shortly before I turned 14 (1985). My top curve was fused using stainless steel Harrington rods and bone chips from my hip. I had to go back into a brace about a year after my surgery for 10 mos. until my bottom curve stabilized.
There are risks with every surgery, even minor procedures (I'm an OR nurse now).
My pain control was great. Only time I needed something extra was when I woke up and tried to sit up, I was half-asleep still and forgot to do it carefully.
Someone with more recent experience might be better to ask about the physical therapy. The only PT I did after surgery was minimal, basically just making sure you were able to walk steady...but this was 1985 when they used to keep you on bed rest for a week and then put you in a body cast...we don't do that any more, but you may need a brace until the fusion heals.
On average, you'll be in the hospital 3-5 days, taking care of yourself in about 7-10, weight restrictions for 6 mo. It takes about 6-12 mo. to completely recover. Talk with your physician about weight and activity restrictions based on how the type of surgery (posterior approach? trans-thoracic approach?) and your lifestyle (do you have to walk a lot at school/work? carry a heavy load? need to dive to work or school? etc.).
I'm as normally functioning as anyone (are any of us really "normal"?). I never got off schedule with school. Graduated college at 20 and have been an OR nurse for 16 years, one of the most physically demanding areas of nursing (lots of lifting and lots of standing in one place for long periods). I've had 2 children without difficulty (didn't even use an epidural). I love to travel (I don't set off metal detectors), yoga (though the fusion prevents some positions), and SCUBA dive. I can pretty much do anything I want...but don't tell my husband I use the scoliosis to get out of vacuuming :)
I still have a 40 degree curve, a prominent shoulder blade, one shoulder is higher, my hips a little uneven, and rib prominence on one side. But my spine is stable, no breathing or cardiac problems and I carried to pregnancies without a hitch.
The one shoulder is higher makes it easier to sling a shoulder bag on. And those uneven hips...that one that juts out a little more is a perfect resting spot for an infant.
I have no problem wearing backless things. I think I have a great back scar. The hip scar, not so pretty. But everyone, EVERYONE, has problem areas on their body. I'm an RN, I've seen thousands of naked bodies, no one is perfect. Here are some other famous people who share scoliosis with us: http://www.scoliosis-world.com/famous_people_with_scoliosis.htm
Are you being treated at a Shrinerâs Hospital/Clinic by your doctor? As a former patient and now a healthcare professional, I think it's absolutely the best place for scoliosis patients under 18! If you are, ask the docs/nurses if they can arrange for you to visit/talk with other patients or people who will be involved in your care. Other places may do this too, but I think Shrinerâs goes above and beyond for their patients.
Good Luck!
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